Thank you for contacting the Huntsman Cancer Institute. I am sorry to hear about your bladder cancer and I hope this information will be helpful to you. Please share this information with your physician as I am not a doctor and cannot recommend any medical advice. Obtaining a second opinion is a wise course of action with any cancer diagnosis. It provides you with a different perspective of your disease and will provide you with an additional option for treatment or confirm the opinion of the first physician. Although I cannot recommend one specific urologist, I can give you contact information for our urologic oncology department that specializes in your type of cancer. Their website is http://www.hci.utah.edu/group/urologic/program.jsp and you can contact their patient coordinator, Dustin Banks at 801-587-4381. You may also want to search for local board certified urologists at https://extapps.ama-assn.org/doctorfinder/home.jsp
Finally, I have attached a brochure that can be helpful in communicating with your doctor to make sure you have covered all of your bases. "What Questions Should I Ask My Doctor Now That I Have Been Diagnosed with Cancer?" (Huntsman Cancer Institute) http://www.hopeguide.org/hope/ResourceDetailCMD.jac?searchString=&score=0&resourceID=3429&referer=/faq.jsp I hope that this information is helpful. Please visit our Cancer Learning Center website (www.huntsmancancer.org/clc) where you can search for books, videos, DVDs, CDs, and CD-ROMs available for check out. For more cancer resources and information online, visit the HOPE Guide (Huntsman Online Patient Education) website at www.hopeguide.org. If you need more information, or if you can’t link to any of these websites, please let us know. We are happy to answer any further questions and to send you these documents in the mail. I wish you all the best.
Questions for Second Opinions
1) Validate bladder cancer grading (G3) and staging (T1)
2) Validate diagnosis and treatment recommendations
3) What particular risks were added due to bladder perforation during TURBT #1?
Any additional diagnostics or treatments indicated?
4) Opinion on adjunct therapies (complementary not substitutes)
Vitamins – Oncovite, fish oils,etc. (currently taking)
Modified Citrus Pectin – chelating agent (currently taking)
Others recommended or to avoid?
5) Specific Dietary recommendations?
6) If no cancer observed October 23, 2008 cytoscopy, recommended treatment
Additional diagnostics to cystoscopy recommended and when?
Additional treatments to BCG therapy recommended and when?
7) If cancer observed October 23, 2008 cytoscopy, recommended treatment
If radical cystectomy indicated, include prostate or other tissues/glands/organs?
Associated risks of not doing prostate, etc.?
If radical surgery indicated, how long can it be postponed & what are associated risks?
8) If BCG therapies continue, how long before TURBT could be indicated vice radical surgery?