ALL CLEAR - two little words. So brief, so insignificant, and yet so meaningful. Trust me - I shall never tire of hearing that short phrase. This day now marks 15 months of being free from bladder cancer, and we all hope for many more to come. When I cross over 24 months, which should occur in June of 2010, I can begin using the term "remission." But not before then. It is dangerous to believe that this is all behind me. A lifetime of annual inspections such as the one I had today will serve well to remind me of that! In the meantime we shall take the good news as it comes. Our little "club" of bladder cancer folks has had a good few weeks. HK in Toronto had an all clear and just completed 3 very miserable weeks of BCG at 50% dose. Those Canadian doctors sure are conservative, at the expense of the patient's comfort! Then David F. in England went in for a full biopsy under general anesthesia and preliminary results are all clear, we hope the urine stream will be less rosy in the short future! It may be that David is done with treatments for a while - he figures the priority on his case must be low as the response has been a month already in coming. Today I have my all clear, and I look forward to 3 weekly BCG treatments at 1/3 dose starting next Thursday. Keith P. also came thru today with flying colors! On a side note, Robert S. had a mini scare with elevated PSA levels and got to experience a prostate biopsy, but he has lab results already and is also clear from prostate cancer. The day was over early, if not quickly. The drive down took over an hour rather than the normal 45-50 minutes, due to the presence of road construction on nearly every road we used - a side product of the slow economy. No overtime or night work to speed up operations this year! So the road repairs are now going at a glacial pace. Arrived a few minutes early for a 9:15AM appointment and got to fill out new paperwork due to my insurance being eaten by a larger company necessitating new codes an numbers and whatnot. Gave the normal urine sample an had about a 30 minute wait before Dr. Hopkins came in. We exchanged pleasantries and the inspection was done quickly - less than 60 seconds. The familiar burn going in and out - the scope is flexible, but not so much as the rubber BCG tubes! Dr. Hopkins said, "You're fine - everything looks good!" and was quickly gone. After the usual cleanup, re-dressing, and voiding of the saline used for the inspection we checked at the front to ensure our appointments were still good for the upcoming BCGs, and I was treated to a Levaquin as a prophylactic measure against infection. This drug costs over $21 per pill, and it's good stuff. Effective in the target area and no side effects like the cheaper stuff, I was happy to have it.
So tonight we shall have lamb chops and a nice bottle of wine to celebrate. In the meantime I will do a few more emails and go back to bed. While the physical trauma of the cystoscopy is not so bad, there is always an emotional toll taken by these Judgment Days. As always, I hope you find these musings of mine useful, and I thank all of you for your support. Stay tuned for BCG updates (including blow by blow details for those with morbid tastes) starting next week!
Need to contact me? Use the photo-link near the bottom of this column.
Had an interesting annual checkup - no cysto, but ultrasound and blood/urine tests. Bottom line ALL CLEAR now 14 years and counting! God is good!
My parents were from a generation that feared seat belts. In May of 2013 they were both ejected from their vehicle (my father would have said "thrown clear") and did not survive. Automobile safety technology has dramatically improved since the 1950s and 1960s.
People, if you are traveling over 35mph, WEAR YOUR SEAT BELTS!
BLADDER CANCER ROLL CALL
Recent Results
2022
ME! - Steve K. in Bodrum, Türkiye ALL CLEAR on June 10. - 14 yrs
Wil S. in Chicago ALL CLEAR on March 22. - 15 months HK in Toronto ALL CLEAR on Feb 5. - 13+ years
2021
Steven S. in Tennessee ALL CLEAR on Oct 27. - 10 years Roy B. in Alabama ALL CLEAR on May 4. - 9 yrs Scott in South Carolina ALL CLEAR on April 20. - 6.5 yrs
2020
David F. in England ALL CLEAR on October 2 - 14.25 yrs and finished with cystos now!
2019
Julie M. in Illinois ALL CLEAR on June 15. - 8+ yrs
Roy B. in Alabama ALL CLEAR on June 24. - 8 yrs
2018
Ed B. in Washington ALL CLEAR January (but battling lung cancer now). - 9 yrs Bladder Cancer Free Patrick P. in LA area ALL Clear on November 28. - 9 years Sebastián in Argentina ALL CLEAR on October 9. - 5 yrs John B. in Minnesota ALL CLEAR on May 24. - 5 yrs Doug B. in Tennessee ALL CLEAR on April 7. - 3 yrs Ben F. In Louisiana ALL CLEAR on Feb 22. - 6 yrs
Need to contact me? Use the photo-link near the bottom of this column.
Short Summary of My Situation
On March 31, 2008 I was diagnosed with bladder cancer. As a non-smoker, at my age, with no family history of cancer on either side, I was quite surprised. The cancer was T1-G3 and Non-Invasive. It's not immediately life threatening, but my bladder is still at risk. I have been CANCER FREE via surgery for 14 years now, an important number - having exceeded both the two year ultra-high-risk and 10 year medium-risk recurrence periods. Less than 2% chance of the cancer returning now, not zero, so lifetime annual cystoscopies are in order. In addition I have completed 6 weekly treatments of initial BCG immunotherapy and nine 3-week maintenance rounds with moderately unpleasant side-effects. I have implemented radical dietary changes (limited pork, shellfish, sugar, ZERO artificial sweeteners (except stevia), processed flours, or chlorinated water), take several vitamins and supplements including the Budwig Flax Oil Cottage Cheese (FOCC) mix, resumed PectaSol-C MCP,and added regular light exercise.
Every year my doctor will visually inspect for new cancer growth via cystoscope, or a combination of ultrasound with blood and urine tests. While the probability of recurrence is not zero, the risk of disease progression is dramatically decreased now. The downside picture is merely a nuisance. Annual checkups for life. And any new cancer leads to another TURBT surgery to remove and analyze what's there. Probably nothing more beyond increased surveillance after that.
I have pursued an analytical approach to Complementary Therapies - those that can be done IN ADDITION TO what the doctors are doing. There are over 200 "unproven" approaches out there, and some work sometimes. I have conducted an objective, systems-based analysis many of them to determine which ones work under which conditions, looking for common, science-based threads. My current set of things I am doing is described in detail in this post.
All diagnosis, prognosis, and medical treatment recommendations have been validated with second opinions from a urologist in Indiana and Dr. Lamm in Arizona.
I am a great fan of life and doing something useful with the limited time we have on this earth. I enjoy my church, my home life, and my retirement.
My hobbies include extensive international travel, experiencing new cultures, and consuming fine food and wine (both at home and dining out).
On March 31, 2008, I received the very unwelcome news, "You've got bladder cancer!"
I was born in 1959, and I am a white, male, American. I married at age 24, and in October of 2008 we celebrated our 25th anniversary. We have no children, and that's OK with us. I had a vasectomy in 1999, so no changing minds on that decision - and the docs dismissed that early as any type of contributor to the situation.
I am six feet, zero inches, and was 255 pounds when all this started, but weight decreasing now thanks to surgeries and this wake-up call. I am NOT saying cancer comes from being overweight, but weight exacerbates all other problems. (Down to 240 pounds as of 9/1/08, down to 230 pounds as of 12/31/08, down to 220 as of 5/15/09, but back up to 230 and holding since...)
My blood pressure (checked and tracked weekly) runs a hair high - 130/90. Been steady at that level for many years. Been higher lately - stress will do that.
I don't smoke, and never have smoked anything, including marijuana. The docs had some problem believing me, as smoking is a strong indicator for bladder cancer. I tried asking if I should take it up now to break even, and they finally let it go. I find the whole idea of smoking distasteful, having suffered in a home where both parents favored unfiltered Pall Malls. The docs claim that secondhand smoke at home from birth through my high school years would not be a factor.
They also suggest that exposure to radiation and chemicals can cause this. I worked in a chem lab at college and there was stuff around; but my exposure was not that much and I never rubbed my groin on any of it!
I do enjoy an occasional alcoholic drink - usually a couple of glasses of wine with dinner or maybe a beer or two with pizza or during a televised sporting event. My use is less than daily and almost never more than two in any day.
I was diagnosed with gout in 2004. Gout is a crystallization of uric acid in the joints - primarily in the left big toe. These crystals cause irritation and inflammation - then BIG TIME PAIN. Gout supposedly comes from eating rich foods and poor circulation. I may also have a recessive gene for gluten sensitivity which may have contributed; but I have not as yet investigated this. I controlled the gout successfully for a while by super-hydrating (one gallon plus of fluids per day) but 4 international trips proved that I could not maintain or control this outside of home and an air-conditioned office. So in 2006 I began taking 75mg of allopurinol daily. This is also NOT a factor for bladder cancer. Subsequently I changed my diet and lifestyle and lost a lot of weight. Now I am not taking any medication for gout, nor have I had an episode in many years.
4 comments:
Congratulations!! Glad things are still looking up! I know there is power in prayer!
Deb
cok guzel! (It's all good) - awesome news!
Praise God! Congrats on coming so far since your diagnosis. I admire you.
Congratulations Steve ! Be well!
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